{"id":23724,"date":"2023-05-11T18:37:40","date_gmt":"2023-05-11T16:37:40","guid":{"rendered":"https:\/\/ddz.de\/?page_id=23724"},"modified":"2024-01-19T09:04:48","modified_gmt":"2024-01-19T08:04:48","slug":"patient-and-public-involvement-in-research","status":"publish","type":"page","link":"https:\/\/ddz.de\/en\/research\/institute-for-health-services-research-and-health-economics\/patient-and-public-involvement-in-research\/","title":{"rendered":"Patient and public involvement in research"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_row_inner][vc_column_inner][vc_column_text]<\/p>\n<h2>Since 2020 we have been working together with patients and citizens as co-researchers to further expand involvement of patients and citizens in our research (participatory health services research).<\/h2>\n<p>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;20px&#8221;][vc_row_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_column_text]Taking into account their individual resources, interests and abilities, they conduct research in collaboration with us in research projects relevant to health service provision.[\/vc_column_text][\/vc_column_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_column_text]In addition, joint research projects are planned. Our activities include (1) patient and public involvement in research projects, as well as (2) the establishment of structures to expand patient and public involvement.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;80px&#8221;][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221; gap=&#8221;25&#8243; css=&#8221;.vc_custom_1683934106971{padding-top: 90px !important;padding-bottom: 90px !important;background: #f4fcff url(https:\/\/insigniathemes.com\/clariwell\/home-1\/wp-content\/uploads\/sites\/2\/2018\/12\/laboratory-pattern-bg1.jpg?id=14649) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;][vc_column width=&#8221;1\/2&#8243; css=&#8221;.vc_custom_1683933922980{background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;][vc_single_image image=&#8221;23685&#8243; img_size=&#8221;full&#8221; css_animation=&#8221;none&#8221;][\/vc_column][vc_column width=&#8221;1\/2&#8243; css=&#8221;.vc_custom_1683918076203{padding-top: 0px !important;}&#8221;]<div id='ins-heading-69f110aa9642f' class='section-heading ins-heading text-left default    '  style='margin-top:0; margin-bottom:0'><h3 class='section-heading-title margin-10px-top  default '>Patient and public involvement in research projects<\/h3><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[vc_column_text css_animation=&#8221;none&#8221; css=&#8221;.vc_custom_1684314228410{margin-bottom: 25px !important;}&#8221;]Patient-centeredness is a key criterion to ensure high-quality care in the future. By involving patients and citizens in research projects, the research should be more closely oriented to the everyday life of the people whose living environment is to be researched. A joint examination of different perspectives can create a learning process for all participants. In addition, we regularly involve patients and citizens in the development of questionnaires.[\/vc_column_text][vc_column_text css_animation=&#8221;none&#8221; css=&#8221;.vc_custom_1683919151193{margin-bottom: 25px !important;}&#8221;]Durch eine gemeinsame Auseinandersetzung mit unterschiedlichen Perspektiven kann ein Lernprozess f\u00fcr alle Beteiligten entstehen. Zus\u00e4tzlich involvieren wir PatientInnen und B\u00fcrgerInnen regelm\u00e4\u00dfig bei der Entwicklung von Frageb\u00f6gen.[\/vc_column_text][\/vc_column][\/vc_row][vc_row gap=&#8221;35&#8243; css=&#8221;.vc_custom_1683934987439{background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;][vc_column][vc_empty_space height=&#8221;70px&#8221;][vc_row_inner gap=&#8221;35&#8243;][vc_column_inner][vc_column_text css_animation=&#8221;fadeIn&#8221;]<\/p>\n<h2>Current projects<\/h2>\n<p>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row gap=&#8221;35&#8243;][vc_column width=&#8221;1\/2&#8243; enable_shadow=&#8221;true&#8221; css=&#8221;.vc_custom_1683935960693{padding-top: 30px !important;padding-right: 40px !important;padding-bottom: 30px !important;padding-left: 40px !important;}&#8221;][vc_column_text css_animation=&#8221;fadeInUp&#8221;]<\/p>\n<p>Patient and public involvement in the GestDiNa project (aftercare for gestational diabetes)<\/p>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;10px&#8221;]<div id='ins-button-69f110aa9648a' class='button-wrapper     ins-animated fadeInUp' data-animation-delay=200><a class='button  btn-large  ' href='https:\/\/www.buergerschaffenwissen.de\/projekt\/nachsorge-schwangerschaftsdiabetes-was-ist-wichtig'  target='_blank'><span>Show more<\/span><\/a><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column][vc_column width=&#8221;1\/2&#8243; enable_shadow=&#8221;true&#8221; css=&#8221;.vc_custom_1683935968955{padding-top: 30px !important;padding-right: 40px !important;padding-bottom: 30px !important;padding-left: 40px !important;}&#8221;][vc_column_text css_animation=&#8221;fadeInUp&#8221;]<\/p>\n<p>Assessment of information needs amongst people with diabetes mellitus in different stages of the disease<\/p>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;10px&#8221;]<div id='ins-button-69f110aa964b5' class='button-wrapper     ins-animated fadeInUp' data-animation-delay=200><a class='button  btn-large  ' href='https:\/\/ddz.de\/erhebung-von-informationsbeduerfnissen-bei-menschen-mit-diabetes-mellitus-in-unterschiedlichen-krankheitsphasen\/'  target='_blank'><span>Show more<\/span><\/a><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space height=&#8221;100px&#8221;][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221; css=&#8221;.vc_custom_1544083592439{background-image: url(https:\/\/insigniathemes.com\/clariwell\/home-4\/wp-content\/uploads\/sites\/5\/2018\/12\/dotted-map.png?id=1002) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;][vc_column][vc_empty_space height=&#8221;70px&#8221;][vc_column_text]<\/p>\n<h2>Establishment of structures to expand patient and public involvement<\/h2>\n<p>[\/vc_column_text][vc_empty_space height=&#8221;20px&#8221;][vc_row_inner gap=&#8221;20&#8243;][vc_column_inner width=&#8221;1\/2&#8243;][vc_column_text]The establishment of the citizens&#8217; advisory board in September 2020 was another important step towards expanding and establishing patient and public involvement in research of the ISE in the future.<\/p>\n<p>The citizens&#8217; advisory board receives information on the research projects of the ISE and advises the ISE in order to take greater account of opinions, wishes, concerns, fears and expectations of the public in research, to better identify existing gaps in research, to support the expansion of participatory research and to increase public understanding and awareness of diabetes research.[\/vc_column_text][\/vc_column_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_column_text]The citizens&#8217; advisory board is currently composed out of four citizens with different personal and\/or professional relations to the disease of diabetes.<\/p>\n<p>You can find mor informations in the Press release and in the internal regulations of the advisory board.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;100px&#8221;][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221; gap=&#8221;25&#8243; equal_height=&#8221;yes&#8221; content_placement=&#8221;bottom&#8221; css=&#8221;.vc_custom_1683909898438{background-color: #f4fcff !important;}&#8221;][vc_column][vc_empty_space height=&#8221;110px&#8221;][vc_row_inner][vc_column_inner width=&#8221;1\/6&#8243;][\/vc_column_inner][vc_column_inner width=&#8221;2\/3&#8243;]<div id='ins-heading-69f110aa964d8' class='section-heading ins-heading text-center default    ins-animated fadeIn'  style='margin-top:0; margin-bottom:20px'><h2 class='section-heading-title margin-10px-top  default '>Members of the citizens' advisory board<\/h2><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-heading-69f110aa964d8 .section-heading-subtitle {color: #07a7e3;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][vc_column_inner width=&#8221;1\/6&#8243;][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;30px&#8221;][vc_row_inner][vc_column_inner width=&#8221;1\/3&#8243;]<div id='ins-icon-69f110aa964fe' class='ins-float-icon-wrapper margin-20px-bottom ins-icon-box-align-left-basic   ins-animated fadeInUp' ><div class='ins-float-icon-inner position-relative'><i class='link-icon text-medium-gray icon-medium iconsmind-Business-Woman'><\/i><\/div><div class='ins-float-icon-box-content'><h2 class='ins-float-icon-box-title margin-5px-bottom title-font font-weight-600 text-large letter-spacing-1'>Evelyn Bruns<\/h2><div class='last-paragraph-no-margin'><p class='ins-float-icon-box-text  default'>Voluntary leader of the diabetes support group at DDZ, D\u00fcsseldorf and professional employee of the Centrum f\u00fcr Integrierte Diabetesversorgung (CID), Cologne<\/p><\/div><\/div><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-icon-69f110aa964fe .ins-icon-box-icon i, #ins-icon-69f110aa964fe .ins-float-icon-inner i, #ins-icon-69f110aa964fe .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa964fe .ins-icon-box-title, #ins-icon-69f110aa964fe .ins-float-icon-box-title {color: #074575;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][vc_column_inner width=&#8221;1\/3&#8243;]<div id='ins-icon-69f110aa96522' class='ins-float-icon-wrapper margin-20px-bottom ins-icon-box-align-left-basic   ins-animated fadeInUp' data-animation-delay=200><div class='ins-float-icon-inner position-relative'><i class='link-icon text-medium-gray icon-medium iconsmind-Administrator'><\/i><\/div><div class='ins-float-icon-box-content'><h2 class='ins-float-icon-box-title margin-5px-bottom title-font font-weight-600 text-large letter-spacing-1'>Lutz Denken<\/h2><div class='last-paragraph-no-margin'><p class='ins-float-icon-box-text  default'>Managing director of the Kreishandwerkerschaft D\u00fcsseldorf<\/p><\/div><\/div><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-icon-69f110aa96522 .ins-icon-box-icon i, #ins-icon-69f110aa96522 .ins-float-icon-inner i, #ins-icon-69f110aa96522 .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa96522 .ins-icon-box-title, #ins-icon-69f110aa96522 .ins-float-icon-box-title {color: #074575;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][vc_column_inner width=&#8221;1\/3&#8243;]<div id='ins-icon-69f110aa9654d' class='ins-float-icon-wrapper margin-20px-bottom ins-icon-box-align-left-basic   ins-animated fadeInUp' data-animation-delay=400><div class='ins-float-icon-inner position-relative'><i class='link-icon text-medium-gray icon-medium iconsmind-Business-Woman'><\/i><\/div><div class='ins-float-icon-box-content'><h2 class='ins-float-icon-box-title margin-5px-bottom title-font font-weight-600 text-large letter-spacing-1'>Nicola Irmer<\/h2><div class='last-paragraph-no-margin'><p class='ins-float-icon-box-text  default'>Artist, D\u00fcsseldorf<\/p><\/div><\/div><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-icon-69f110aa9654d .ins-icon-box-icon i, #ins-icon-69f110aa9654d .ins-float-icon-inner i, #ins-icon-69f110aa9654d .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa9654d .ins-icon-box-title, #ins-icon-69f110aa9654d .ins-float-icon-box-title {color: #074575;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;30px&#8221;][vc_row_inner][vc_column_inner width=&#8221;1\/3&#8243;]<div id='ins-icon-69f110aa9656a' class='ins-float-icon-wrapper margin-20px-bottom ins-icon-box-align-left-basic   ins-animated fadeInUp' data-animation-delay=200><div class='ins-float-icon-inner position-relative'><i class='link-icon text-medium-gray icon-medium iconsmind-Business-Woman'><\/i><\/div><div class='ins-float-icon-box-content'><h2 class='ins-float-icon-box-title margin-5px-bottom title-font font-weight-600 text-large letter-spacing-1'>Rebekka Hakenberg<\/h2><div class='last-paragraph-no-margin'><p class='ins-float-icon-box-text  default'>Industrial clerk and cloth diaper consultant\/ specialist for sustainable and natural diapering and hello nappy consultant, Solingen<\/p><\/div><\/div><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-icon-69f110aa9656a .ins-icon-box-icon i, #ins-icon-69f110aa9656a .ins-float-icon-inner i, #ins-icon-69f110aa9656a .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa9656a 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{jQuery(\"head\").append(\"<style>#ins-icon-69f110aa96586 .ins-icon-box-icon i, #ins-icon-69f110aa96586 .ins-float-icon-inner i, #ins-icon-69f110aa96586 .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa96586 .ins-icon-box-title, #ins-icon-69f110aa96586 .ins-float-icon-box-title {color: #074575;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][vc_column_inner width=&#8221;1\/3&#8243;]<div id='ins-icon-69f110aa965a1' class='ins-float-icon-wrapper margin-20px-bottom ins-icon-box-align-left-basic   ins-animated fadeInUp' data-animation-delay=600><div class='ins-float-icon-inner position-relative'><i class='link-icon text-medium-gray icon-medium iconsmind-Administrator'><\/i><\/div><div class='ins-float-icon-box-content'><h2 class='ins-float-icon-box-title margin-5px-bottom title-font font-weight-600 text-large letter-spacing-1'>Dr. Hartmut Wecker<\/h2><div class='last-paragraph-no-margin'><p class='ins-float-icon-box-text  default'>Head of communication, district Waldeck\/Frankenberg<\/p><\/div><\/div><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-icon-69f110aa965a1 .ins-icon-box-icon i, #ins-icon-69f110aa965a1 .ins-float-icon-inner i, #ins-icon-69f110aa965a1 .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa965a1 .ins-icon-box-title, #ins-icon-69f110aa965a1 .ins-float-icon-box-title {color: #074575;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;30px&#8221;][vc_row_inner][vc_column_inner width=&#8221;1\/3&#8243;]<div id='ins-icon-69f110aa965bc' class='ins-float-icon-wrapper margin-20px-bottom ins-icon-box-align-left-basic   ins-animated fadeInUp' data-animation-delay=200><div class='ins-float-icon-inner position-relative'><i class='link-icon text-medium-gray icon-medium iconsmind-Business-Woman'><\/i><\/div><div class='ins-float-icon-box-content'><h2 class='ins-float-icon-box-title margin-5px-bottom title-font font-weight-600 text-large letter-spacing-1'>Caro Pudmensky<\/h2><div class='last-paragraph-no-margin'><p class='ins-float-icon-box-text  default'>Teacher, coordinator of the Looper meetings in the Cologne area (www.luckyloop.koeln), #dedoc\u1d52 voice<\/p><\/div><\/div><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {jQuery(\"head\").append(\"<style>#ins-icon-69f110aa965bc .ins-icon-box-icon i, #ins-icon-69f110aa965bc .ins-float-icon-inner i, #ins-icon-69f110aa965bc .ins-float-right-icon-inner i {color: #07a7e3;}#ins-icon-69f110aa965bc .ins-icon-box-title, #ins-icon-69f110aa965bc .ins-float-icon-box-title {color: #074575;}<\/style>\")\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[\/vc_column_inner][\/vc_row_inner][vc_empty_space height=&#8221;100px&#8221;][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221; gap=&#8221;25&#8243; css=&#8221;.vc_custom_1683910256946{padding-top: 90px !important;background-image: url(https:\/\/insigniathemes.com\/clariwell\/home-1\/wp-content\/uploads\/sites\/2\/2018\/12\/laboratory-pattern-bg1.jpg?id=14649) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;][vc_column width=&#8221;1\/2&#8243; css=&#8221;.vc_custom_1545311084447{background-image: url(https:\/\/insigniathemes.com\/clariwell\/home-1\/wp-content\/uploads\/sites\/2\/2018\/12\/lab-home1.jpg?id=14647) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;][vc_single_image image=&#8221;19615&#8243; img_size=&#8221;large&#8221;][\/vc_column][vc_column width=&#8221;1\/2&#8243; css=&#8221;.vc_custom_1543315480405{padding-top: 0px !important;}&#8221;]<div id='ins-heading-69f110aa965d3' class='section-heading ins-heading text-left default    ins-animated fadeIn' data-animation-delay=200 style='margin-top:0; margin-bottom:0'><h2 class='section-heading-title margin-10px-top  default '>Interested in doing research together with us? You are welcome to contact us!<\/h2><\/div><script type=\"text\/javascript\">\n\t\t(function(jQuery) {\n\t\t\t\t\t})(jQuery);\n\t\t\t\t\t\t<\/script>[vc_column_text css_animation=&#8221;fadeIn&#8221; css=&#8221;.vc_custom_1684314876312{margin-bottom: 25px !important;}&#8221;]We are continuously looking for interested patients and citizens for smaller and larger projects. We know from previous projects that both groups have valuable ideas and expertise in research projects.<\/p>\n<p>Furthermore, we would like them to participate, as health care directly affects them. If you are interested, please contact Sandra Borgmann.[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_raw_html]JTVCcGVyc29uJTIwc2VhcmNoJTNEJTIyYm9yZ21hbm4lMkNzYW5kcmElMjIlMjBoaWRlX3Byb2ZpbGVfbGluayUzRCUyMnRydWUlMjIlNUQ=[\/vc_raw_html][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space height=&#8221;70px&#8221;][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_row_inner][vc_column_inner][vc_column_text] Since 2020 we have been working together with patients and citizens as co-researchers to further expand involvement of patients and citizens in our research (participatory health services research). 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